MUST READ: Cooking with Fibromyalgia: A Young Man’s Guide to Simple and Delicious Vegetarian, Gluten and Dairy Free Meals


This would be great for the 750 people in my pain support group to read! Many of them suffer from FMS!

Book Hub, Inc.

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Cooking with Fibromyalgia offers simple, delicious, and healthy recipes incorporating minimal and whole ingredients for those suffering from chronic pain, fibromyalgia, and other illnesses.

Throughout the book, author Calvin Eaton outlines strategies that he uses as a cook living with a chronic illness to maximize his time, energy, and resources while in the kitchen. His recipes include gluten and dairy free recipes that are both healthy and easy to prepare.

ISBN: 9781490408958
Price: $0.99
Publisher: Living with Fibro Press
Publication Date: 8/15/2013

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Meet the Author

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     Calvin Eaton is a twenty-seven-year-old special educator and writer. He was born in Lockhart, Texas, and…

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The Two Shall Become One….


I have the most exciting news! Today’s post is going to be more photo’s and less “blogging”. I’m on “cloud 9” as I’m so excited that my youngest daughter, became engaged tonight to a wonderful young man! They’ve been dating about a year and 3/4 and her fiance’ did take us aside a couple of weeks ago and he asked “our permission and for our blessing, to marry our daughter! He said that he “loved us” and He “loves her and is crazy about her and he wants to marry her”!! Of course we said “yes, you have our blessing!” I even added that “we love him” and I said that we “are thrilled to have him be our “son”. Here are the pictures and the story for your enjoyment:

 

Hello Luvs,

OMG!!! I/we are so excited to welcome a son in law, into our family! He and my youngest daughter are getting married next Year and We could not be happier! He is the “son” I always hoped to have, he will be a wonderful son(in law..LOL). We are so blessed to have our family be growing and have our daughter be so happy and blessed and in love, as well!

He took our youngest daughter to their favorite pastime, a Detroit Tiger’s baseball game. After the game, they went to their favorite restaurant, “The Melting Pot”. While they were gone, her fiance’s sister, (she is 19 or 20 years old and in College. She and my youngest daughter get along so great and they do a lot together. I’m so happy that my daughter is gaining not only a wonderful man to be with her forever, but a “sister” too!) was decorating my daughters’apartment with balloons, a sign, flowers and rose petals! She was so surprised and so excited and we just couldn’t be happier for them both! My daughter just got her “dream job” and she’s so happy about that as well. Her life is coming together and I’m proud to say that I have done the best job I knew how and I think she turned out to be such a wonderful and blessed young lady! Check out the great photo’s from this memorable occasion.

“ENGAGED”

 

the decorations that they arranged and had his sister do, while they were gone

 

 

 

 

 

IT’s So AWESOME & Sparkly!!

 

Life Lessons

Life Lessons

Hello Luvs,

I was puttering about the Internet and I came across something on someone’s Facebook page, that was just too much great wisdom, for me to let it go! I just had to share it with everyone in every possible venue that I can.  I have had a really bad time of it, for most of my life. I have been hit, punched, beaten, starved, poisoned, ignored, stalked, divorced, battered, abused by almost everyone in my life who was supposed to love and care for me.  I have had a gun pulled out on me and pointed in my face, and by my own mother! She died of colon cancer in 2002, God rest her soul. She’d told me she was “sorry” before she died, and I forgive her. She’d been through so much in her life, it was not her fault. Though, I guess I’m a stronger person because I had 2 daughters and never once hurt them, starved them or touched a hair on their heads, except for french braiding!  My story is a long one and not for light reading or a queezy stomach!  After all  of the above…Oh and then double that by my father, except the gun part! Then add a bit more from him, and my brothers, my ex husbands.  The ex’s …we won’t even go there this time!

Then…on top of all of the above, I suffered from and was diagnosed with PTSD and CKDII in 1998 and started on disability.  I intended to try and return to my very good job at the University of Michigan, as an Interpreter for the Deaf and a clerical Float III. But one day all of that changed when a man and his wife were arguing in their car while driving down the road.  They ran a red light and my life changed in  a moment!  I went to so many Dr’s that I cannot even remember them all ! I had to go through the auto Insurance “Independant Medical exams  (NOT so Independant, and very mean, horrible “non Dr’s”  who worked for the Ins. company and who couldn’t get a real job in their medical field, so they got a job hurting injured people even more! They were/are despicable human beings!) for about 6 or 7 years and until I couldn’t take it any longer. I gave up life long “help” due to the injustice and horrible treatment by those “IME Dr’s”. I had to fight them with my team of Dr’s behind me every time and I would win every time!  But it just took too much out of me, like they intend it to do; I didn’t give up but I had to stop it or I was going to die!  I also had to endure 3 years of  MTBI or “Mild Traumatic Brain Injury” Rehabilitation at a Center, outpatient.  I no longer posses the abilities to remember anything until I’ve been told at least 4 times! I used to have no need for an address or phone number book, because it was all up there in my head! But my Cerebellum was /is damaged from that car accident and I will never be the same!   I think this is another reason that I identify with this Disney Cartoon, more than any other!  The fish named “Dori” or “Dory”??  She has a TBI or a very bad memory problem and issues!  She does many of the same things that I do and have done since that MVA in 2002! I think I identify with her character, though her problems a bit different than me and the problems that I have.

I’ve been through 10 surgeries, a pacemaker and then 10 yrs later, a replacement surgery for the pacemaker. During that surgery, they found that the first one had worn right through my Pectoral muscle and it had to be rebuilt by a plastic Surgeon!  I suffer also from Dysautonomia, POTS, Neurocardiogenic Syncope, Hypogammaglobulinemia, and much too much to write here in this place, today.  But one more thing I will mention is that I then acquired the most painful chronic pain disease known to people today! It is called “Complex regional Pain Disease” (aka: RSD and CRPS).  It is a burning pain, as if your body is on fire but also feels like you are on ice at the same time! I got it after my foot surgery in 2007, which was 2 years after my heart attack and one year after I suffered a CVA or stroke!

I then “lost” my oldest daughter, my “sunshine girl”. She left home at 18…just 18 years. We will not “go there” as to what happened because I respect her .  Its been 9 years and she has since gotten married and now I have a beautiful granddaughter, whom I’ve never gotten to meet (yet); nor did I get to go to her wedding. I raised her sister  and her mostly by myself after their father left me for an 18 yr old bar waitress after 8 years of marriage.

OK…so it’s not been too easy for me, right?? But I look at the world in a different way than most. I can be sad and in pain and do nothing !  I can just sit and cry and be depressed all of the time….OR I can try to help others and be as loving and kind as possible to be the opposite of all those people who wanted to destroy my spirit and who still get pleasure from my pain!

If you just live by the ideas from a Disney movie…life can be so much better! Yes, it’s true! I have a soul-mate and BFF husband now for the past 16 years.  Both of my daughters are very intelligent. My older daughter will love me again, because I’ve never stopped loving her…I just know it has to be true.  I love these words that I found online, as they are words to live by and they are stemmed from the theme of the Disney movie “Finding Nemo”…I hope you enjoy these Life Lessons from the movie:

1. Listen to your parents; they just want to keep you safe.

We can all agree that Marlin walks a fine line between doting Dad and overbearing growth-stunting everything-is-out-to-get-us-crawl-under-this-rock Dad. But he has his reasons, including why he didn’t want Nemo to swim to the boat. There’s a reason why parents tell kids to do things that they don’t want to do — i.e. holding hands in the parking lot (“I CAN WALK BY MYSELF!”) — and Finding Nemo is a nice reminder that, yes, parents can be total pains in the rear. But they’re just trying to keep you safe and healthy — so listen. You don’t want the equivalent of a giant boat taking you across the ocean.

2. Accept help.

There’s no way Marlin could have made it to 42 Wallaby Lane without the help of strangers — even the most unlikely strangers. We can’t do everything on our own.

3. Step outside your comfort zone.

It’s easy to live inside a little bubble (or anemone), but Marlin learned more about himself, as a father, during his epic journey into everything that scares him. Even traveling on the EAC, which would have totally caused a panic attack pre-Operation Find Nemo, ended up being enlightening and fun.

4. Greediness = annoying.

Mine, Mine, Mine, Mine, Mine, Mine.” Just repeat that bird squawking to your kids every time they grab a toy and yell “MINE.”

5. The importance of teamwork.

From Marlin + Dory to Nemo + the dentist office crew, teamwork is more effective than a solo mission. There’s a lot of cooperation and collaboration in Finding Nemo, which is an important lesson.

6. The importance of friendship.

One of my favorite lines is at the end of the movie, when Marlin is sad and defeated, heading back home without Nemo. Dory wants him to stay and says, “I remember things better with you…It’s there, I know it is, because when I look at you, I can feel it. And — and I look at you, and I…and I’m home.”

Friendship can come from the most unexpected places.

7. Be kind to animals.

Lest you end up like Darla. (DUN, DUN, DUN.)

8. Your differences don’t define you.

One of my favorite details about Finding Nemo is the subtle physical differences (Nemo’s little “lucky” fin, Gill’s scarred body, Sheldon’s H20 intolerance, Pearl’s short tentacle, etc.) and mental challenges (Dory’s short-term memory loss, Bruce’s food addiction, Gurgle’s germaphobia, etc.). But all of these characters are so likable that their little quirks are endearing and normalized.

9. Your parents will never give up on you.

Like, ever.

10. Just keep swimming…

I’ve found that singing Dory’s signature song can get you through just about any rough patch. Just keep swimming, just keep swimming, just keep swimming, swimming, swimming. Sound advice.*

***finding-nemo_zps17a7ca08I found this at: ” 10 lIfe Lessons from “Finding Nemo”: at  http://www..disneybaby.com/blog/12-life-lessons-from-finding-nemo/

Great Info on POTS


I was looking up something else today, when I came across this abundance of information on Yahoo’s Best answers. this girl had asked “what are some if the things that I can do ti help my POTS? she was understandably upset when she got a long article regarding what POTS is all about and it’s full range of symptoms… I have autonomic nervous system failure/dysfunction, and POTS,NCS, and much more, so I’ve read this and I do concur that it’s a lot of wonderful information for someone looking for “What is POTS?…& “What are the symptoms of Dysautonomia and/or NCS, CFS etc.?” Here is the information that I found on Yahoo’s “Best answers”:
POTS is defined as a minimum 30 bpm acceleration of heart rate from the supine to the standing position within 10 minutes or less, with a peak heart rate reaching at least 120 bpm. Some patients have heart rates that go all the way up to 150 bpm and beyond. During tilt table testing, some POTS patients have large drops in blood pressure and pass out (syncope), while other patients have only relatively shallow drops in blood pressure. A small percentage of POTS patients have no drop in blood pressure at all.
POTS is diagnosed on the basis of heart rate increase and heart waveform signature revealed by electrocardiogram, not on the basis of a drop in blood pressure, as is the case with orthostatic hypotension and neurally mediated hypotension (NMH). Neurally mediated hypotension is commonly associated with POTS, but having NMH is not a prerequisite for a diagnosis of POTS. The secondary symptoms of POTS vary significantly from case to case. The most commonly reported symptoms are listed below.
The length of time POTS patients can comfortably stand varies widely from case to case. Patients may become dizzy, lightheaded, and develop chest and heart pain from standing beyond their limit. Blood pooling in the legs and splanchnic bed (abdomen) may occur, which is felt in the same way you feel water fills your mouth when you get a drink. Shortness of breath, blurry vision, tingling in the legs, sweating, and feelings of heat from increased adrenaline production are common symptoms of orthostatic stress. Some patients pass out frequently, which is dangerous as well as uncomfortable. Many patients experience spells of supine or standing vertigo, but this symptom is dependent on the root cause of the POTS. Remember that POTS itself in not a specific disease like polio, but rather a symptom and a syndrome (a collection of symptoms).
The current prevailing theory is that the heart pain associated with POTS is predominately non-ischemic, but further research may alter this perception. It is believed the left sided heart pain so common among POTS sufferers is due to differences in heart chamber pressures, abnormal heart wall motions, and/or nerve damage. It is not related to common angina which is usually caused by blocked arteries cutting off the supply of blood to the heart. While uncomfortable and debilitating, this left sided heart pain is not believed to be immediately life threatening. On occasion, patients may also have the strange sensation that their lungs are filled with glue. This uncomfortable feeling is often misinterpreted as being evidence of a lung infection, while in most cases it is a cardiovascular symptom.
With POTS and NMH you become lightheaded and weak even before you get a measured crash in blood pressure because the small blood vessels in the brain paradoxically constrict when you are under orthostatic stress. This cerebral vasoconstriction cuts off the blood supply to brain cells while veins in the legs and splanchnic bed are dilated and pooling blood away from your heart. With inadequate filling of the heart’s left ventricle and abnormal function of the alpha and beta adrenergic systems, it is no wonder that strange and irregular heart beats (palpitations) are a universal symptom of POTS. These are often referred to as ectopic heartbeats, with frequent premature heartbeats the most common aberration reported.
POTS often generates a temporary rise in blood pressure immediately upon standing due to the rapid acceleration of heart rate. Tachycardia is the body’s defense mechanism against a lack of sufficient venous blood returned to the heart. Blood vessels, particularly veins, can become unnaturally dilated, causing blood pooling in the legs and splanchnic bed (abdomen). Thus the heart must beat more times in a minute to make up for the reduced blood volume transferred by each beat. If a POTS patient stands up too suddenly, there may be so little blood in the heart that it may collapse upon itself, causing very painful heartbeats. Patients often have measurably low standing pulse pressure, which can be an indicator of venous pooling.
Frequent urination is a common symptom of POTS, NMH, and severe cases of CFS. This problem is sometimes misdiagnosed as diabetes insipidus, which is a disease caused by reduced production of a pituitary hormone called vasopressin. Some POTS patients develop a diabetes insipidus like syndrome which is believed to be caused by somewhat reduced vasopressin output, low blood volume, and disruption of the alpha adrenergic system, which helps the kidneys retain water and sodium.
Reactive hypoglycemia is a common problem for both POTS and CFS patients, and occurs through a complex series of neural and hormonal interactions which are not yet fully understood. The traditional definition of hypoglycemia is an abnormal lowering of blood sugar levels after the body overreacts to carbohydrates with excessive insulin production. Researchers now understand that this lowering of blood sugar levels is not the only cause of symptoms. Recent studies show that when patients with reactive hypoglycemia eat carbohydrates, which cause a sudden increase in blood glucose levels, their bodies abnormally produce excessive amounts of adrenaline and other stress hormones. These stress hormones themselves cause many negative symptoms of their own, in addition to the eventual crash in blood glucose levels due to excessive reactive insulin production.
Most patients with POTS have difficulty sleeping, which may result from a number of factors, including abnormally high adrenaline levels caused by increased orthostatic stress (the stress of standing). Central sleep apnea is a common problem for people with POTS, which in some cases may be due to damage to the medulla, which controls important cardiac and respiratory functions. Central sleep apnea causes breathing to temporarily stop while sleeping.
Low grade fevers, mild chills, and general flu like symptoms are common with POTS. This may be explained by a neurologically based loss of control of basic autonomic regulatory systems, an overactive immune system, or abnormally high adrenaline levels effecting body heat production. Many patients have positive anti-nuclear antibody tests (ANA test), which some doctors say is due to high adrenaline levels activating the immune system. Other doctors suggest positive ANA tests may be due to an autoimmune disorder damaging nerve cells. Patients are left in confusion as to which theory to believe.
Chronic fatigue and weakness are common problems for POTS sufferers. Those who have pure POTS, without CFS or significant immune system involvement, generally feel better and have greater postural tolerance despite tachycardia. Many POTS patients have common allergies, uncommon food allergies, and are highly drug and chemical sensitive. Many POTS and CFS patients experience severe night sweats.
Nausea, bloating, and sore intestines are a frequent complaint. The nausea can usually be eliminated by not stressing yourself beyond your capabilities. Bloating is caused by low motility in the intestines, a byproduct of nerve damage. Patients often develop irritable bowel syndrome, which leaves the intestines feeling raw and tender. Difficulty swallowing (dysphagia – pronounced dis-FAY-jee-uh) is also a frequently reported problem.
Numbness in palms and soles is a common symptom of POTS. Legs, arms, and hands are often totally numb upon awakening from sleep. Upper extremity somatosensory evoked potential studies are usually normal in POTS and CFS patients, but this is not always the case. Unusual coldness of the hands is also common and is referred to as acral coldness. Patients frequently experience sporadic itchiness, burning and tingling sensations all over the body, especially at night. Some patients may also have dramatically reduced sweating, which can be tested for through a thermoregulatory sweat test.
Most POTS patients have poor balance, which may be caused by decreased blood flow to the brain and other disturbances in the vestibular system. The patent’s root neurological damage may also cause balance problems directly as well as causing the debilitating symptom of orthostatic intolerance. Patients are often unable to pass a drunk test by walking with one foot placed directly in front of the other. An abnormal gait is common. Patients may walk with legs wide apart and feet flared out to the sides as an instinctive adaptive response to increase their stability.
Eye pain is another common problem, as is a feeling of pressure behind the eyes. Patients can become so weak that their eye muscles are easily strained and focusing is difficult. Many POTS and CFS patients see tiny little black dots floating in front of their eyes. This is a problem of the fluid in the eyes which occurs naturally with age, but which can be made dramatically worse by the onset of CFS or POTS.
Supine blood pressure readings are usually normal or below normal in POTS patients. This is in sharp contrast to multiple system atrophy (Shy-Drager syndrome), idiopathic orthostatic hypotension (Bradbury-Eggleston syndrome), and other forms of central autonomic failure typified by low standing blood pressure and high supine blood pressure. Lack of supine hypertension (high blood pressure when lying down) is usually a sign you do not suffer from the classic forms of central autonomic failure.
Most POTS patients will only have a few of the symptoms listed here, while others will have unique symptoms all their own. A poor memory is a major symptom of POTS, and many patients will have a difficult time just remembering their own symptoms while conversing with doctors. The total damage to the autonomic nervous system POTS sufferers experience, called dysautonomia, causes what Dr. David Robertson of Vanderbilt University refers to as “mild autonomic abnormalities.” These symptoms, such as frequent urination and reactive hypoglycemia, are not life threatening, but they are quality of life destroying.
People who do not have problems with low blood pressure have a difficult time understanding the concept of orthostatic stress. They fail to realize that blood pressure is as basic and essential a bodily function as breathing. How would you feel if your breathing were constricted for even one minute? Low blood pressure can cause an enormous amount of symptoms and suffering, but those who don’t have it often miss that fundamental point. Some patients with POTS have such a damaged regulatory system that they may get paradoxical wild swings in blood pressure from below 50 to over 200. Complexly, POTS can be a low and high blood pressure problem combined.

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Nerve Damage In FMS Patients

Nerve Damage In FMS Patients

Hello Luvs,
I was searching fir something else on the Internet but stumbled across rid info about Fibromyalgia”. The authors name is at the bottom to make and give her credit. But I had to make sure and share this for those of you who follow me & who suffer from chronic pain &/ or “Fibromyalgia”. i hope this is interesting for you! love & hugs,
Suzanne
About.me/suzanne

“NERVE DAMAGE IN FMS PATIENTS!!”

Nerve Damage Found in Nearly Half of Fibromyalgia Patients
Yahoo! Contributor Network Vonda J. Sines Aug 1, 2013
Massachusetts researchers who used a small group of subjects to study fibromyalgia found that nearly half the patients with the disorder had nerve problems. These individuals experienced damage to nerve fibers located in their skin and also showed evidence of a second illness.

A research team from Massachusetts General Hospital followed 27 adult fibromyalgia patients and 30 healthy subjects. In addition to signs of nerve damage in the fibromyalgia subjects, they found evidence of a disease known as small-fiber polyneuropathy (SFPN) in these patients, according to ScienceDaily.

Fibromyalgia is known as a particularly frustrating disorder for those who have it because not all medical professionals take it seriously. Since it’s difficult to treat, many patients need a team of healthcare providers.

Although experts have suggested a number of potential causes, none has been specifically linked to the illness. The National Institute of Muscular and Musculoskeletal and Skin Diseases reports that the condition strikes as many as 5 million American adults. Around 80 to 90 percent are women.

SFPN is a disorder marked by severe pain attacks that usually originate in the hands or the feet, although some patients experience a more generalized pain over the whole body, Genetics Home Reference reports. Many symptoms are similar to those fibromyalgia patients report. SFPN patients can’t feel pain that occurs in a very small area, like that from a pin prick. Some have trouble telling the difference between hot and cold, while for others, extreme temperatures trigger attacks.

SFPN is a form of peripheral neuropathy. It affects the peripheral nervous system, which links the brain and the spinal cord to muscles and cells that detect various sensations. Unlike fibromyalgia, it has a number of known causes that doctors can treat and sometimes cure.

The objective of the Massachusetts research was to explore any possible links between fibromyalgia and SFPN. The subjects completed questionnaires and underwent physical exams and tests to look for SFPN, including neuropathy assessments, skin biopsies to evaluate nerve fibers in the lower legs, and tests of autonomic functions like heart rate. The results showed significant neuropathy in patients with fibromyalgia, but not in the control subjects.

Thirteen fibromyalgia patients had a notable reduction in nerve fiber density, autonomic function test results that were abnormal, or both conditions. This indicates SFPN. While diabetes is a common SFPN cause, none of the patients appeared diabetic. Two had a hepatitis C infection. More than half showed signs of immune system dysfunction.

The researchers have published their findings in the journal PAIN. They concluded that their results provide some of the earliest evidence of a specific mechanism behind at least some cases of fibromyalgia. They look at the results as a step toward finding improved ways to treat the disorder. The next step — getting independent confirmation of the results from other labs — is already underway.

Vonda J. Sines has published thousands of print and online health and medical articles. She specializes in diseases and other conditions that affect the quality of life.

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