Helping University Students Be Aware While Being a Health Advocate for RSD/CRPS


I was seen in a restaurant wearing my RSD/CRPS hoodie sweatshirt and the t-shirt that I bought from RSDHOPE.ORG with the cool Orange, yellow, red flame Awareness ribbon on it for our disease.  The girl, who’s name is Jennifer and who is a student at Eastern MI University, said that she was in a group. She told me they needed to do a project on something that was relatively unknown. So she chose RSD/CRPS when I started telling her about my illness. I told her about the burning fire pain and the allodynia or being too sensitive to touch on my skin. I explained about my “full body /systemic RSD/CRPS” and how I have it inside of my body and that I have lesions and purple, mottled skin and my worse RSD/CRPS left side is bigger than my other side extremities. She was very interested and called her group. They wanted to get involved and now we had a session of questions and answers and info that I did with them last week. Soon we will be having a booth set up for non profit in November at the University. This booth will be for spreading awareness about this awful disease. The more people that learn about it, the better it is for us when we visit Dr’s and E.R.’s and such. Here are a couple of video’s that I made from the meeting last weekend. I have to thank Keith Orsini from Rsdhope.org for all of the flyers, decals and brochures that he sent for their group and the meeting, with more on the way for the booth in Nov. I also want to say “thanks” to Jim Broatch from RSDS.org for giving me a video to show the group that explained the Dr’s and patients side of view and actually “Keith” was in the video! So here are my couple of video’s to share with you now and one video is the original Question/Answer and information meeting October 2015:

Photo Oct 11, 10 59 22 AM (1) Photo Oct 11, 10 59 31 AM Photo Oct 11, 10 59 44 AM Photo Oct 11, 11 00 35 AM Photo Oct 15, 6 18 41 PM Photo Oct 15, 6 19 00 PM Photo Oct 11, 11 59 59 AM

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