Please Help This Blog Win?


Hello Luvs!

This year for the WEGO HEALTH awards, my blog/this blog……our Blog; “Tears of Truth”, has been nominated “Best in Show””-Blog”! It was nominated through the WEGO Health awards website! We are so excited! Please just take a moment of your time and endorse my nomination by visiting the ensure below and just click on “endorse Suzanne Stewart”. I need your help to walk with me through this every step of the way, if you’d do me the honor? I did not participate last year when I felt that I couldn’t beg people to vote for me. But this year I feel like this blog deserves the award and “it” has been nominated. It’s not so much “ME”, but this Blog, that deserves the nomination and maybe, hopefully the award for “Best in Show-Blog”… here’s the link to endorse this blog! Thank you! So much! Please also “share this link”….thank you so very much, from the bottom of my heart!

 Here’s the link:

https://awards.wegohealth.com/nominees/562

It’s WEGO Health awards Time Again!


Hello Luvs,

I’ve missed writing to you with that salutation! I’ve been writing so many of my posts as articles for the Ntl. Pain Report, that I’ve not had much chance to get close and personal with you!

I posted my newest American Sign Language video for you because June is PTSD Awareness Month.  This is the last day of June 2017, and I wanted the song “Concrete Angel” done in ASL to be posted for you.  It was to honor the time of year for PTSD Awareness and all of the abused children and people of the world! I don’t know if you’ve read any of my private posts or more posts towards the beginning of this blog? That’s where I have my posts about me being abused.  If you’d like to read about my journey and possibly the parts that are private, please just comment or message me and I’ll send you the password so that you can read all of the private posts!

I also want to let you know that this year once again, I’ve been nominated for a WEGO health award. I’m always very honored to be nominated. The only reason that I didn’t participate last year was due to the rule of having to ask people to vote for me daily on Social media. This year that’s not a requirement, so I will possibly ask you just a couple of times, to vote for me this year. Mostly I’m asking and very excited that We’ve been nominated for “Best in Show BLOG”!! I’m so excited about this because it’s about this blog and being nominated for an award! I’ve posted the link to vote for me on the menu to the right and I’ll post it here now again.  If you could find it in your heart and if you have a moment to vote; also if you enjoy this blog, please vote for this blog at:  https://awards.wegohealth.com/nominees and you may look for me by photo, name “Suzanne Stewart” or my Twitter handle @RASEforCRPS.  Thank you so much !! Also please feel free to share my nomination so that others may also vote for this blog! 

I won’t ask you again to vote for us, on my blog. I may post on twitter or Facebook and ask people to vote a couple of times. I’m grateful for anything! Again I bow to you and say “thank you!” 

Sincerely,

Suzanne Stewart 

https://awards.wegohealth.com/nominees

Respectfully And Humbly Health Advocate Decides Not To Pursue Awards


2019

Hello Luvs,

If you see the pictures on this page you will notice that I was or have been nominated for a few, “WEGO health Activist Awards” this year for 2016. I was really excited to find out this news. I mean, I worked really hard this year and it’s such a “high” to think that someone thought inspired enough about the things that I have been doing all year.  I was nominated for: Best in show: BLOG …for THIS BLOG….now that is pretty cool, right?!  Next up is: Best in show : Instagram, Twitter, Facebook and Pinterest. How fun is this, right?

Well, it might be fun, or it might not? I never mind the hard work part. I love social media, computers, gadgets,  and technology in general. But I remember a few years ago, when I was a finalist for the “unsung hero” award. I realized that just being nominated was exciting. Becoming a finalist was very fun.  I humbly and gracefully accept these nominations. But I am respectfully pulling myself out of this “game”.

I have been a health advocate since 2005. I started out a Chemo-Angel and I’m still in that program. I am a Card Angel, Chemo-Angel, prayer angel, and special assignment angel for the program. When I got Diagnosed with RSD/CRPS in 2007, RSDHOPE.org put me in touch with a “mentor”. This was someone who’d had the diagnosis much longer and could answer my questions and just sort of “take me under their wing”. Later, I became a Mentor for newly Dx CRPS patients, myself; and have been one ever since that time.

I have always worked alone, never really a part of any big group or “family”. I was part of the Orsini family at RSDHOPE.org, since 2007. I still worked alone, made up my own awareness events, and started my own fundraisers. In 2014, I made several RSD/CRPS bracelets. I raffled them off during the month of CRPS Awareness, which is November. I made $250 and sent it in to RSDHOPE.org..   Mom Orsini was so kind and thankful, I’ll never forget her kindness.

So now I have joined a bigger “family” and it is the U.S. Pain Foundation. I joined this group, this wonderful, loving and kind group of fellow “Pain Warriors” just last year in 2015.  I love being a part of the U.S. Pain Foundation family.  We look out for each other, and they look out for me. My husband and I went to their advocacy retreat in August, this Summer 2016. I/We had  some of the most awesome times of  our lives. We made real lasting friends and memories to cherish. I have found my little places in the pain world and they are with the  U.S. Pain Foundation and RSDSA. I have more than enough to keep me busy and they always tell us to “take care of ourselves first”. We cannot be any good for anyone else, if we aren’t taking care of ourselves first.

I have great respect for the people and the organization at WEGO Health. I have done some research for them this year and enjoyed the online discussions afterwards. I got to meet “Julie” and I have become close to her. I would and will always help them at any time they need an extra set of eyes, hands or ears. I feel like our organizations together can empower pain patients by working side by side and giving a sense of “belonging”. This then makes us feel less alone on our pain journey.

I am very proud that WEGO health recognizes health activists and advocates annualy. But I am very happy to have been nominated because that nomination alone is a little bit of validation that I am inspiring someone and/or making a difference. To me, this is my “winning”.  I want to do wonderful things and help the underdog, the sick, the people with chronic pain and invisible illnesses. I honestly, do not want to spend my time getting people to vote for me so that I can “win” an award. I have my “win” and it’s in my heart and soul. My “win” is hopefully that I’m helping others like myself. I pray that I am spreading HOPE and even inspiring others. We need to keep HOPE alive in order to make sense of some of the outrageous things that have happened lately in the world of chronic pain patients. We cannot let things turn dark or lose HOPE. We have each other and together we are empowered and we are strong.  This nomination is enough for me and I thank you so much for those because that is my win, just being nominated.

This month was very busy and the next few months are going to be very busy for me. I have full body /systemic CRPS, along with many other health and pain issues from “A to Z”.  I need to put my energy into raising awareness for Chronic pain and for U.S. Pain Foundation. Spreading optimism and positive energy is where I wish to be. I will also be very busy with the quickly approaching  month of NOVEMBER. It is the month of spreading awareness for my invisible most painful illness of Systemic CRPS! I will be on the front lines with RSDSA, raising awareness and hopefully fundraising for them during this upcoming November 2016. As I’ve said before, “HOPE” is a verb.  You must DO SOMETHING in order to have it. Then you must continue to do something in order to keep HOPE ALIVE. I just prefer to spend my time helping others, tweeting, writing and blogging for the pain community and the RSD/CRPS community. I don’t want to spend my time begging for votes from people and bothering everyone I know to vote for me every day so that I may be recognized or “win” something. I am winning now. I am winning half the battle just by trying to be as kind and loving as I can to all people I meet. I am winning by spreading awareness and optimism and Hope. If I can keep one person’s HOPE alive, then I have already won. If I can keep my HOPE going along with it, that ‘s all the better!

Thank you so much everyone for your kind words and your faithfulness. Thank you for these nominations below and I will wear them with pride. I want to keep inspiring and winning the war against stigma of invisible illnesses and chronic pain patients. I want to fight against our losses in the medication issues we face now days. This is where I want to focus my little bits of energy each day. I want to stay focused on the issues stated above and  not on myself and “me, me, me” . I prefer to focus on YOU, my chronic pain family  and on my darling  very young granddaughters.  With these I have JOY along with HOPE and that is the best of both worlds for a chronic pain patient. I thank you again and I humbly want to withdraw from the WEGO Health awards 2016. Good Luck everyone.

 

I am a Health Activist


I have been a Health Activist and/or Advocate for several years now. I have a support group, that is “closed & secret” to help people in the group feel free to get out their thoughts. If someone wants to join, they just have to PM me or email me and ask. The group is called “Invisible Diseases, Especially Chronic Pain and RSD/CRPS”.  I have been the administrator and sole moderater since 2007, when I was diagnosed with RSD/CRPS. This group has over 850 people in it. We all  listen to and help eachother.  I also have fund raisers to help raise money for RSDHOPE.org and in the future I hope to help RSDSA also. I have another support group on Google+ too, but it has only about 120 people and I don’t moderate it much as it is more of an open group. It is called “Be Aware & Care”. I am a Chemo-Angel and have been since about 2005. This means that I get assigned a “buddy” who is going through Chemo therapy and I send him/her weekly notes, small gifts etc; that are uplifting and only positive. I do not expect anything in return. My last “buddy” was a 4 yr old child and my kittly “Luna” was her “Angel Kitty Luna”. I thought it would be more fun for a child to receive gifts/cards from “Angel Kitty Luna”, than an “old lady”….LOL.  She loves my Luna and so much so that I made Luna a page of her own on Facebook, if you want to stop by and visit.  It is called “Angel Kitty Luna Skye”.   Lastly, I have a website at :  http://www.freewebs.com/jewelrymkr and a Tumblr page at:  SupportInJewelry.Tumblr.com where I showcase Awareness/Support jewelry items that I’ve been making since about 2005 also.  I’ve been unable to make any or much jewelry except for “special orders” for the past 2 years or so. My pain has increased since my Physician left abruptly and nobody else wants to  prescribe pain meds anymore for the real people who truly need them.  I try my best to help others because it forces me to focus on something and someone else instead of my physical pain and the rest of it.  I wanted to inform you also that I have  a couple of uplifting pages and another group that is closed but not “secret” on Facebook.  The pages are:  “Hope For Invisible Diseases” (page), “Angel Kitty Luna Skye” (page), “Hope and Freedom From Abuse & Betrayal”(page), and “RASE For Invisible Diseases”(page AND group both).  I hope you feel welcome to visit and “Like” them and stay awhile. You may even add something of your own that is helpful.

I wanted to just share my photo’s from the newspaper a couple of years ago. It was exciting to be one of just a few advocates to get nominated for the Wego Health’s “Unsung Hero Health Activist Award”. Thank you for allowing me to share with you. A new post is being worked on right now and it is coming soon. It is going to be about Chronic Intractable Pain and pain doctors and Opioids. It is going to be discussing the difference between being “addicted” and being an “addict”. Believe me, there is a big difference.  One is being tolerant and phsiologically dependant on a drug for pain that a physician prescribes for you.  The other is being overly consumed with thoughts of and compulsive actions regarding an Opioid medication.  So…watch for that one…coming soon! 

Some Have Sight, But No Vision!!!!!


Some Have Sight, But No Vision!!!

Hello Luvs…

    Guess what?? I’ve been nominated for “4” Health Advocate  activist awards through WEGOHealth.com!!  What this means is that people who I’ve possibly helped or people who know me feel that I am indeed an advocate for people with Invisible Disabilities, including but not limited to RSD/CRPS. It would be wonderful if some of my  readers could and would endorse me.  You see, the next step is that I need endorsements from people who know and trust me. Would you possibly be able to “ENDORSE” me?  Please….could you??? Would you please help me to continue helping others ? You can endorse me by going here;http://awards.wegohealth.com/nominees/suzanne-562 for the “Best in show: community or Forum”….OR to the nomination for “Health activist Hero” is at: http://awards.wegohealth.com/nominees?award_id=health-activist-hero and for the “Best in show: You tube” award; if you’d like to endorse me for that…..go to : http://awards.wegohealth.com/nominees/award/best-in-show-youtube and last but not least to endorse me for the “Best in Show” “Best Kept Secret”Award...go here: http://awards.wegohealth.com/nominees/award/best-kept-secret .   These are the 4 links to visit to endorse me for all 4 (four) of these WEGO HEALTH ACTIVIST AWARDS.  If you don’t know me at all, I surely don’t expect you to endorse me. Only if you know me and you believe in me and you believe & that I’m a good candidate,only then should you endorse me .  I would never ask anyone to endorse me if it wasn’t something they felt in their heart and soul.  So please, think about it, would you?  I don’t want this due to a need to make my ego grow….I don’t need this to be somebody, to be an advocate with a drive. I don’t wish this for selfish reasons. I only hope for this to help my CAUSE…..my dream that there will someday be cures for all of these horrible invisible diseases, and especially for the horrible, most painful of all Chronic Pain diseases; “RSD/CRPS” or aka “Complex Regional Pain Syndrome”. If I win any or some or all of these awards, it will just make my purpose be known a little bit more. Maybe someone will say “Oh Yes, that girl…the one who won the “Best in Show: Community Forum” or the “Health Activist Hero” award, she makes that support jewelry for a whole bunch of diseases. She writes about it, has several Social media sites about it and does “You Tube” informational video’s and performance video’s to catch people’s attention!  She’s that woman who has the “Support in Jewelry” website.  Then…maybe, …just maybe…. someone will buy a bracelet from me. I will in turn, keep giving the money that I get from the support bracelets (the majority of it, minus expenses) to Non-Profit RSD/CRPS groups like RSDHope.org. Then…after that…maybe one day…we will have that dollar amount to spread more awareness for…., do more research for….and support more education for these most painful Invisible Diseases, and then one day my dream will come true and there will be less pain.   Helen Keller once said that “alone we can do so little, but together we can do so much”!..She is my hero….she was blind, but she saw more than most people can see…she was deaf, but could listen with her heart….she was mute but said more than anyone I know!!! She said once…that the “most pathetic people, are those who have sight but no vision”…I have a vision. I am pursuing that vision and I won’t stop until I draw my last breath! I may not have money, I may not have a large family and I may have more pain than I can bear some days….but….I am richer than anyone I know, I have the best “family” because I know who truly loves me and I have experienced pain and do so every day. It reminds me not to ever give up!! Thank you….